migrainesandarrhythmia

  Highlights: Neurologist ordered an MRI due to atypical migraine symptoms in children. Doubled preventative med. Going to the chiropractor tomorrow. Missed two days of school this week. It was becoming overwhelming to post every day between taking care of Jack, my own migraines, and work, so I am posting updates here and there when I can. Jack has continued to get migraines most days. Last weekend, he played his last soccer game, but he really didn't seem to be doing well. He said he had a migraine afterward and missed his end-of-the-season party. He missed Eliot's game as well. On Sunday, he felt bad again and didn't think he could make it to Cub Scouts. I told him that I really needed him to come because we were having a new Scout and we also needed to drop off the books for our book drive. He made it and did OK. He was talkative and friendly. I got him and Eliot icecream on the way home after dropping off the books. Our pack collected 235 books for Little Free Libraries...

  Highlights: 5/15: Woke up with a mild migraine, but he went to his soccer game anyway. I gave him Ibuprofen in the morning. 5/16: Jack had a headache at some point, but he didn't tell me until the next morning. He was very emotional all day (crying, angry, didn't want to go anywhere). We rested in the morning because I had a migraine. After lunch, we went strawberry picking, but Jack was crying because he didn't know what to eat for lunch and didn't want to go anywhere because he was sad. I told him they might have cotton candy, which got him out the door. He felt better after getting out of the house. Later, I let them play video games and when it was time to go to Cub Scouts, he didn't want to go again. I bribed him with hot chocolate and he had a good time. Jack is usually happy to go off, but he is getting more reclusive, emotional, and says he doesn't want to see anyone. 5/17: Jack woke up with a migraine and visibly in pain. I gave him Ibuprofen and he w...

  Highlights:   Monday, May 10: Jack stayed home from school with a migraine. Ibuprofen did not help.  Tuesday, May 11, Jack returned to school. I heard from the cardiologist that we can stop using the heart monitor. Jack was doing OK, but got a severe migraine in the evening and through the night. Very nauseous. Ibuprofen did not help. Wednesday, May 12, Jack wanted to stay home, but I convinced him to go to school because it was a half day. Eliot stayed home due to congestion and not feeling well. They've both had a bit of a cold for about a week. Thursday, May 13, Eliot returned to school, but Jack stayed home. He has a fever today and does not feel well--congested, nauseous, a little bit of a headache.

 It's been a little while! Jack's migraines have been mostly under control. He has not missed any school. On Wednesday, May 5, we had his cardiologist appointment. His EKG came back normal, but the cardiologist did hear the same variable heartbeats that the pediatrician notices. Also, Jack has said that his heart "burns" (but not like heartburn) and he feels dizzy at times. Jack is wearing a heart monitor for 30 days to track his heartbeat. If he feels unwell, he can push a button to let the doctor know. Then the doctor can compare his symptoms with the data. Also, if data is abnormal, the doctor will get a text message or phone call. It's pretty cool!  Jack, though, does not think it is that cool. The device is large and he has wires connected to his chest at all times. Finding a way to clip on the monitor has been hard. It doesn't clip on easily and it is large in his pocket (sometimes too big for his pockets). He has two pairs of athletic pants with zippers...

 Update for May 3. Highlights: Jack went to school without complaints. He was feeling fine when I picked him up. In the evening, he started complaining about everything hurting. He asked everyone to stop talking because it hurt him (phonophobia). It was about 7:30 PM and close to bedtime. I gave him Ibuprofen and lay in bed with him. He was restless, but fell asleep eventually and woke up fine in the morning (May 4).

Highlights: Moderate migraine on Saturday (May 1) afternoon. Jack played video games and ran around with friends. He had a migraine when he got home. I gave him Ibuprofen, which helped. No migraine on Sunday (May 2). We drove to the fossil museum (2.5 hours away) and dug in the fossil pits for a couple of hours. The sun did not bother him, and he had a bit of screen time in the car. In the past seven days, Jack has only taken Ibuprofen once. It continues to be effective. He has had three migraine-free days. His migraines have started in the late afternoon or evening--he has not woken up with them.