Highlights: Jack's headaches have decreased since going to the chiropractor. He has gotten nausea every night and also other migraine symptoms, like photophobia, phonophobia, and emotional, but not really any head pain. He stayed home from school yesterday (Wednesday), but went back today. The migraines are impacting Jack's emotional well-being.

We have one week until Jack's MRI. I am looking forward to that being over. I don't necessarily think we will find anything, but I will be glad for it to be behind us. Last night, I dreamt that CHKD called to say that the MRI was going to cost us $200,000. What a mess. We have had a lot of medical expenses this year (and I'm still paying for my last MRI, which was $8,000 before insurance and $2,000 after insurance), so hopefully Jack's MRI will be close to... free? Is that possible in America?

I'm really glad to say that the chiropractor seems to be helping. His head does not hurt most of the time, but he still gets other other migraine symptoms. The nausea is the worst. It comes every night and was very bad yesterday morning. He missed school because of it and I did give him the anti-nausea medicine. He said it didn't help any. I don't know. We're so close to summer break. I hope he can just hang in there.

I always worry about Jack's academics. He is an amazing student. His teachers always love him and praise his wonderful behavior and big effort. He gets "caught being good" ALL the time. Like, seriously, multiple times a week. The guidance counselor does breathing exercises with the students, and he gets "caught being good" because he is the only one who participates. Jack is awesome at school and he loves it. He has tons of friends too. I get so worried about him falling behind, though, since misses A LOT. He's met the requirements of second grade; he's grown a lot this year; and I need to just focus on healing this summer so the fall can be better. Third grade is such a leap when it comes to expectations.

I'm trying to brainstorm about what sort accommodations we might need to ask for in the fall on a 504 plan. With a migraine diagnosis, he should be eligible for reasonable accommodations, but at this point, I don't fully know what he'll need. Tests will all be taken on Chromebooks next year. Jack struggles with screens, especially electronic tests. Can I ask for paper tests? Can I ask for his tests to be read to him? Obviously, I am getting ahead of myself right now. I pray that he is assigned an excellent, accepting teacher in the fall.

Some days have been tough emotionally for Jack. It is becoming hard to get him out of the house. He generally loves a good adventure, but lately when we try to do something, he covers his face and often cries. This personality shift is not like him at all. We beg to know why he is sad or why he doesn't want to go. He doesn't have a very clear answer and I assume he isn't feeling well or the emotional toll of the migraines and living in the uncertainty and fear of an attack is getting to him. We try to give him his space to rest so I or Chris take Eliot off alone, but Jack always changes his mind (after we've left...) and then is happy to come along. I will turn my car around anytime to get to enjoy the day with Jack. I always tell him that I'm so glad he changed his mind and that it wouldn't be as much fun without him.

Praying for relief. Praying our boy can feel normal again soon. <3